TO BE

I’ll walk with you to the end, the least I can do for my friend, and after we reach the end I’ll be waiting for you again.

~rwc

We had a graveside service. (Later in April we had, what has become known as a celebration of life, at the Legion Hall in our hometown of Mechanic Falls. The turnout was overwhelming), It was a bright day at the graveside, but windy. Very windy. I arranged for a Buddhist service, not because I belong to any particular religion, but because I find Zen Buddhist psychology a more reasonable and palatable way of life. A way of acknowledging our human existence…and death. Janis also subscribed to this as an acceptable way of believing or at least, accepting, the life that she was given.

Basho, a 17th century Japanese poet, offered this invitation to see, that some have lived and struggled through a different life than we may have had: “Come, see real flowers of this painful world.” A while ago, I ran across another use of this metaphor of a flower in a poem by William Carlos Williams, “Saxifrage is my flower that splits rocks.” Of course, I had to look up the word saxifrage; it’s Latin meaning, breaking rocks. That felt more like Janis. She floundered through a grim childhood and worked every day to stay afloat. Most did not see that side, that ‘darkness visible’, but I did. She was that flower who split rocks her entire life, sometimes just to get up in the morning. Someone said, getting up in the morning not to push the rock over the top of the hill, but just to push the rock up the hill. My role was to be… Just to be. Not a martyr but a friend, a human being who would not abandon her. The humane thing to do. Besides, I love breaking rules. There is nothing martyr about that! It was a choice I made. It is my koan for life. And I can be a stubborn bastard when it feels like the right thing to do. (Well…yeah, usually. That is, on my good days; mostly. Sometimes. Usually around lunchtime. In the morning; or sometimes late afternoon, um, sometimes before bedtime…).

In life there is pain but there is also love and hope.

Today I’m still working at acceptance. Acceptance that I can’t jump in my car and go to her unit to visit her, hold her hand. Acceptance that though I’m surrounded by friends and family (especially my grandchildren), I still feel alone. There’s a hole in my life now. That so-called self-sacrificing role is exposed as a sneaky two-way street. I was getting so much from my visits with Janis in her Unit for the past few years–indeed, for my life, that I’m coming to understand that this new now is the rest of my life. Whatever happens next, it will be without her here. I can do this. In fact, I am doing it. My plan is to be the best-damned grampa I can be. Every child deserves a grandparent! And though I do totter a bit more these days, I’m fortunate to be in pretty good health. My days, and nights, are improving. I’m able to take my grandchildren on walks (my grandkids tolerate my blabberings “Be careful!” and that old standard grandkids just love to hear, “What?”). I see friends regularly for coffee and monthly breakfast with our OFBC . (You know who you are). My adult children are checking in on me regularly.

All is well.

I’m getting back to writing. It grounds me in ways that nothing else comes close to in providing some avenue for my introverted solitude. This blog has been neglected for months, or longer. And the novel I had started has been on hold, the character’s frozen in time, waiting to find out what they will become and where they will go. Stephen King cautioned that letting your characters linger, leaves them to become cardboard-like. I haven’t reached that point…yet. But it’s time to get back to them. (Scroll down, all the way down).

keep going

The sun is out. I’m on call to pick up Cam at her daycare this afternoon and meet Brin for the school bus later. I’m on my third cup of coffee (which I just discovered was lukewarm, yuck) and getting ready to make lunch for myself. Beans I think. Yes, canned. I’m disinclined to cook meals.

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THE ROOM DOWNSTAIRS

Last night, August 19th was the first booksigning for ENTANGLED. My youngest daughter, Maya, assisted me and brought my 5 yo grand-daughter with her. This was an especially nostalgic event. It took place at my old high school, now the town municipal building. As I mixed and spoke to folks while signing books (busy trying to focus on the signing and get the names spelled right and not mix up their books) I had another of those moments that happen a lot lately: I kept feeling the presence of the young girl in the room downstairs. That’s the classroom where I met Janis more than half a century ago. The room downstairs 2 floors below the library we were in. The room where this petite young girl dropped into my orbit and turned my life into something especial.

Some of the folks who attended that night also went to school here with Janis and me. (Gene, Roger, and Fred.) For a couple of them it was their first time back inside their small high school since graduating in 1964. I tried avoiding the topic of the room downstairs with my old schoolmates, but it demanded my attention and I brought it up to the crowd. I consider that moment in my life to be one profound example of how life has it’s way with us, and changes us in unique ways. Here I was, nearly 75 years old, in the same building where I met Janis, and here were many of our friends and classmates. But, most importantly, here I was with our daughter and our 5 yo grandchild, Brinley who was enthralled (but not sure what all the hullabaloo was all about) with the whole affair and moved quickly into the children’s section where she remained most of her time.

My sisters, Cathi and Sonia attended as usual. And my cousin, Bobby. It always feels good to have my family with me. And many friends! I also heard from a friend I knew from my work in Child Protective Services. Shawn attended the signing from her home in New York via Zoom! What a nice surprise, thanks to Nancy, the librarian. (Holy Crap, I’m on Zoom.) We stay in touch through Facebook. Also attending were friends who were staff at the summer camp segment of the year-round camping program, these people, one of them a former camper, are the kind of folks any parent would be proud and happy to have in their children’s life. Camp was character building. One camper wrote on FB that her experience at camp saved her life. And these friends – these staff – are a sample of the character building/child oriented program that hundreds – thousands of children learned from. I’m proud to have them in my life as well. In addition, the surprise of the evening for me was an old friend of my mother’s (Joyce) who ran the Headstart program that I worked in after getting out of the military in 1968. She got me started volunteering in her classroom. I left after that first day high and strangely grateful for the experience. I loved it. And wondered how I could work in this field of early childhood education. Well, I was hired as a teacher and ran my own classroom. This experience sent me off on a life career in services to families and children. Joyce has attended book signings for each of my books. She always shows up. We hugged and talked. She whispered to me, “Bobby, do you know how old I am?” She smiled a big joyful smile that took me back to 1968 in her classroom of 4-5 yo kids, “I’m 94.”

So, later at home, collapsing on my bed, I was flooded with memories, all of them proudful, grateful, and sweet.

And the room downstairs? Well, the entire interior of the old high school has been renovated. Our old classrooms do not exist as they were in my memory. However, in my memory that one room downstairs remains exactly as it was that morning in 1961.

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POST-ENTANGLED

Now what? Six years into this book project in a dubious effort to somehow express a lifetime and now-it’s done. The book is published and I’m starting this blog today with little idea of where it will take me, except maybe to just start writing something. Entangled was a modest effort at best and difficult to write for a variety of reasons. The initial idea was to be a letter to our children. It took on a life of it’s own when I realized that to convey to our kids the kind of life we (Janis and I) had, it would take a book. I didn’t like that idea; in 2014, I was not in a good state of mind. I was only starting to accept getting older and then tossed into a world of dementia, struggling with guilt and grief losing Janis to a locked unit. I needed to understand all this myself, never mind trying to express it to our kids-it seemed daunting. And that in itself presented obstacles. Would our kids even want that, especially if I decided to go public? What is the point in such an endeavor? How intimate do I dare to be in such a project? I am not a public kind of person. I tend to be private. This changed my outlook on things. (Blogging, for instance.) All of a sudden I felt a need to open this up for my own understanding and maybe in that context it could result in something that others might find, if not interesting, at least addressing some understanding about their own lives, or the life of someone else that they know and love. Annie Dillard wrote: “If we may learn to know, may we not learn to understand?”

Are we just dust in the wind, or is there something else we might be missing? I don’t subscribe to any particular organized religion. I’ve been there, done that. I realized that religions were really ‘a finger pointing at the moon’. I wanted to know that moon they were pointing at-I wanted to know it directly. Religion didn’t respond to my personal search. So at a young age I started to look into many forms of religion that served as a kind of research. I took courses in college related to philosophy and comparative religions and sought out opportunities to be involved in any services that were available to me. I traveled around a little (including while posted overseas in the military) and attended different religious services, read anything I could find, tried out different forms of meditation and settled in my early 20’s on zazen meditation. Zen is not a religion, though it is often viewed as, and associated with Buddhism, Zen is considered more as a tool/method to a way of life, (Shikantaza) and can be attached to any religion, or to none at all.This led to a hobby of sorts in theoretical physics and more recently an interest in the ‘new physics’ and quantum physics that has a comfortable relationship with some of the experiences that came out of my personal quest for a cohesive sense of understanding why we are not just dust in the wind. While writing Entangled I did not plan on getting into my own philosophical quest, but it seemed so much a part of what explained to me this connection of events from my youth up to today that it couldn’t be ignored in Entangled.

I’ve mentioned along the way recently that Janis is my life’s koan. I mean by that that my life has always been about this relationship. Even long before we met. I’m not going to expound on that too much. It’s too complex and is indeed a koan-a paradox, a riddle that defies logic and/or exposes the limits of logical reasoning in understanding the inexplicable. Trying to explain any further than that is not reasonable in this text, and requires some self-study that meditation can assist one with.

So I suppose that beyond promotional stuff I still need to do, Entangled is a closed book.

I’m hoping to get through 2, possibly 3 more books before joining the walker-crowd, wearing Velcro-laced white sneakers, and living on Progresso soup and PBJs. (Wait-except for the walker and the sneakers I’m already halfway there.) I’ve learned from experience that I don’t do well by finishing one book and then jumping too quickly into another. In this case, maybe a little longer given the investment of emotion and time I spent on this one. I’m kind of thinking about another non-fiction work. But, can’t decide what that would be. I am in the early stages of getting A Certain Fall, republished with an additional, added text to the work. I have the rights to the contracted book back and some ideas for adding/updating it. Other projects that I started years ago but left undeveloped are also still interesting to me. One of those has some elements of a work of fiction based on actual events that occurred during my work in the military. I like this idea. The other book I started and still have interest in is a straightforward work of fiction. A novel set in a small fishing community located in coastal Maine. This one would be another attempt at a character-driven novel similar to my earlier effort at this genre in Mother, Night, and Water. I’m looking forward to both of these as possible next projects, and another educational experience/training in writing, especially because I have them both started and moving me into the next phase of their writing. On the other hand, I always enjoy starting fresh. I love the work. But, also now after 4 books, have enough experience that I understand the words: “If your writing comes easy, you’re doing something wrong.”

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FORGIVENESS/ACCEPTANCE

(A Precursor to ENTANGLED)

I like words. When I was a boy, maybe 10 yo or so, my mom picked up this huge dictionary. I mean, it was heavy and required its own table to set on. I recall flipping through all the pages in wonder of the number of words I was going to have to learn. Of course, I didn’t. But I was enchanted by this book. And later when I started writing (age 13 yo) I began to think about words, dictionaries; just imagine what I felt like when I discovered a thesaurus. The birth of a dork.

Eventually I began to understand not only that most of my friends, at that age primarily guys, were not as interested in words. But I evolved in my wonder of this new world of words and started using words with an aim to be precise. Or at least I aspired to that end. So when I write now as an experienced, but still a student of the craft of writing, I am a little picky about vocabulary and precision of choosing words with hopefully a little more skill. This is especially true and a challenge in the writing of Entangled .

I was invited into Janis’s therapy at some point because she was missing a lot of the nuances, and recall of her history. So I continued with this therapist after Janis was placed. It started out as an assist with grief, but has now become as much about my understanding of what we went through together as a result of her abusive history, and major mental health issues due to this history, as my grief. Therapy turns out to be a self-exploration and analysis of how this marriage survived. And a new, or renewed, respect for what Janis went through all the years of her life. The therapist told me grief is not a feeling. Huh? Another word to clarify. Or a zen koan?

I avoid absolutes, in general. I look around me and see that extremes nearly always create harmful outcomes. In general. Life has extremes, naturally, but life for the most part runs somewhere down the middle. A lot of compromise goes a long ways toward peace. World peace or just peace between people. The theme of any relationship can be viewed this way. Nations or couples. Friendship or enemies.

Forgiveness or acceptance?

I’m mostly referring here to child victims and the adults they become. Forgiveness is a loaded word. Ask what forgiveness means, and a plethora (I like that word) of scenarios floods my mind. Most of which are firmly entrenched in our cultural and religious traditions. I have no problem with that except when we are trapped with a definition for a problem that does not work. I’m not prone to the idea of free will; like forgiveness, I think there are complex definitions of this idea; biological, genetic and epigenetic, neurological, religious definitions…I find myself stuck.

The word forgiveness is fraught with emotion making it difficult for people to work through when they have been wronged. In my work I found myself struggling with how a child understands that word. Or how his parents understand (i.e. stand-under, or support) an offender who has harmed their child in ways that sometimes are so pernicious and far reaching, that it seems unforgivable, Are we really supposed to forgive? See, I’m stuck. And that’s what this is all about in the book, Entangled. Not if we can forgive, but, can we accept. Do we punish the victim–the child? Of course not. And the perpetrator? Forgive? Tell me what that word means. Who is required to bear responsibility, accountability? What’s the difference between these terms? What happens to the victim as they become adults? Do we then hold them responsible by expecting them to forgive. Or do we choose to look at our own behavior and consider the options we have for this child/adult victim that we love?

I’m responsible for how I respond. That’s it. We are what we have done. We are what we do. That’s as far as I’ve gotten so far in challenging myself to look at the victim who is experiencing life awash with emotion, and instead of responding to the matter with anger, shame, disdain, or passivity, or some other cheap response that exposes its own extreme degrees of outcome, I get to accept responsibility for how I respond. Not expecting or holding the victim responsible for their offender’s assault on them, by asking them to forgive. In the case of assault to a child, we now know the neurological impact on the child’s brain and development. Accept or reject. Not necessarily forgiveness–whatever that really means. What we wish for these adult victims is to ‘move on’, forgive and let go. Because their condition is hurting us, and we want it to stop. We want them to be happy and have a good life, so that we can move on. Have a life. It’s this selfish desire to have things be the way we want them to be that creates this distress for us. Sadly, many of these survivors of abuse are suffering neurological consequences that make them unable to live the life we would hope for them. So what are we left with if we commit to them? What is our responsibility in these circumstances? Understanding all is to forgive all? Discount the victim for not getting over it? (Just snap out of it?)

I can take responsibility for how I respond to the victim–their condition. Accept them–just as they are. To offer unconditional love. Caritas, that term that describes the deep compassion for the other person’s plight, their condition in life. Is the victim responsible for their condition, do we expect them to take responsibility? Or, can we hold them accountable for their behaviors instead. Forgiveness implies the victim’s responsibility for their circumstances; acceptance expresses understanding, but expecting them to be accountable for what they do, not who they are. A word: Love. Overused, vague: We love our cat, we love our cell phone, we love mac and cheese, pizza, beer, sunrises, sunsets, our four-wheeler, our car, our coffee. But I’ll be damned if I can come up with a better word for how I love my children, my grandchildren, my life–my wife. The word Love seems to cover that just fine.

Compassion is not all warm and fuzzy. In fact, in the words of Pema Chodron, it’s actually raw. It challenges us to change. The challenge for us is to remain compassionate.

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JANIS~A CORONA VISIT

A cool autumn afternoon with a shifty breeze. Janis appears in her wheelchair bundled up in her blue penguin blanket, one of those many gifts she received over the years from a wildlife organization. Today is Tuesday, September 22nd. It is a 4 pm visit. Karen, one of the activities personnel from her Unit brought her down for today’s 15 minute-Corona visit. The visits take place outside in the garden, in a large gazebo. The garden still beams with colorful flowers that blur into the changing fall foliage like an impressionist painting. This is only the second visit I’ve had with her since March 8th. These visits take place under some strictly enforced protections for the residents, staff, and the visitor. Plexiglass surrounds Janis on 3 sides and masks are required for Karen and me–the exception is Janis. (I haven’t asked, but I assume it is to protect her from us; and certain dementia patients present a unique problem for a mask.) The entire complex has not had a single case of the Covid-19 virus to date!

Janis notices me before I get to my chair (placed 6 ft. from the plexiglass) and followed my eyes all the way to my sitting. She seems more alert to me than the previous visit, and connects quickly. Again, for those who don’t know this already, she is deaf and cannot speak. Our visit requires a little skill on my part with mime. But I’m not shy, Karen is the only other person present, and I know Karen well. So I proceed with smiles and mime my happiness by patting my heart and tossing my open hand, throwing her kisses, and mouthing, “I love you. And I miss you.” Karen permits me to remove my mask briefly so that Janis can see me. A small, tentative smile from Janis is accompanied with a nodding of her head. Of course I am moved by this out of proportion to the actual behavior. A little giddy with excitement, I want to hug her and hold her hand. We have used up a few minutes already with this emotional greeting.

I use a little time conversing with Karen about Janis on the Unit, trying to keep our connection by never taking my eyes from Janis. Karen relates that staff is still impressed with how Janis’s recovery last Fall allows her to be comfortable and maintain good spirits. She says that Janis laughs frequently and responds with smiles and giving gentle pats for the care that the aides and nurses give her. She is often in light spirits. She occasionally feeds herself or attempts to with little assistance. Her appetite remains good and she is healthy. The entire time Janis gazes around at the garden; she smiles at Karen when Karen readjusts her blanket after a stiff breeze blew it off her lap. Karen also confirmed information that the administration is looking for ways to continue these visits inside as the weather shifts to winter temps.

Janis makes eye contact more frequently as the visit continues. I observe that Janis’s weight seems stable and she is far less ‘puffy’ (edema) than previous photos of her have shown, her color is good. In fact, she looks pretty good overall. I also wonder if those Zoom meetings that take place between visits (not as frequently as I would like) have something to do with this slight improvement with these limited, physical visits. The Zoom visits are not very successful in connecting with her. Janis seems to not understand this techy, virtual, substitute visitation, but it provides me with a few minutes to observe her even as a mostly one-way visit.

As our time runs out I notice my anxiety increases, however, I also note that I am less disturbed than I anticipated. And this bothers me some because I don’t want this to become the new-normal. I don’t want to accommodate to this crazy, bizarre new world for Janis and me. I want to hold her close. I want her to feel loved, to know I’m Bobby, and I’m still here with her; that she is still Bobby’s girl.

My next visit is scheduled for Tuesday, October 27th at 2 pm. A long stretch without being with her. I respect and appreciate this effort to keep her safe. And I support the restrictions this pandemic requires. However, this is becoming difficult. I find myself less patient and more concerned as time goes on. After all, time is crucial. Janis has a fatal, incurable condition. I have been with her on this Unit long enough to see how unpredictably the final day may arrive. Seemingly healthy residents one day are gone the next.

These are strange, byzantine times. Challenging in complex ways. Requiring absurd adjustments that don’t come close to normal (which is becoming an absurd descriptive term in itself). The world as we knew it seems to be standing, wobbling on its head. Like a Kafka novel on steroids.

As I’m leaving, I don’t look back. But, before I’m out of sight, Karen calls,
“Bob, she’s laughing and smiling.” For just a moment I catch myself–maybe Karen is just making sure I’m okay with this. But, I turn and wave goodbye.

“Patience is not endurance, it is loving acceptance.” ~Robert Aitken.

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Dementia, Multidiagnoses, Love, and Eternity

This is the subtitle to the book ENTANGLED. I’m going to expand on the title here a little because, as it is currently with an editor I am allowed some time to think about this book without rereading it while it is being edited. It is meant to clarify not only the title of the book but also to edify the content in part to help folks to decide if they want to read such a book.

Of course, as anyone who writes or reads will tell you, you can’t know if you like a book unless you read it. However, I will tell you this much, I could’ve added a few more words to the subtitle, but I didn’t. (Four seems to be a goodish limit, doesn’t it?) The one word I got stuck on but decided Love was a better choice for the subtitle, was the word Compassion. Compassion is a more accurate word for the overall intention of the book expressing the theme that runs through all the years Janis and I were and still are together (together-apart). But, Love won out in the specificity of the narrower meaning. (Love-narrower? Really?) Love is less complicated. Not because love is not complicated, but it is a more popular term and generally understood. And it’s shorter. I’m going to give you something I read recently that gave me pause. I read it a few times and each time it set off more bells and whistles for me. I have often struggled to grasp why I would not accept the term codependency, as the book surely smacks of that. I’m not saying it isn’t real. But, in defense of those who discover that they live life compassionately: It is not weakness, it is, in fact, a strength. I think compassion gets a bad rap. After all, as a minimum defense for a somewhat complex idea, if all folks who love from a place of compassion were to be labeled as codependent, where does that leave the teachings of the profound spiritual leaders of our species? Jesus, Buddha, the Dali Lama, for starters. Don’t misunderstand this, I have worked in the helping professions all my adult life and I’ve met people who are clearly codependent, and I’ve met those I observed as sincerely compassionate. And there is a third category, of stupid-compassion. So…what do we do? These three different categories deserve respect equally as real phenomena. But, how to distinguish between them?

Here is a starting point:

“Compassion is a threat to the ego. We might think it is warm and soothing, but actually, it is very raw. (Italics, mine.) When we set out to support others, when we go so far as to stand in their shoes, when we aspire to never close down on them, we quickly find ourselves in the uncomfortable territory of “Life not on my terms”. ~Pema Chodron*

I am not going to portray myself as a compassionate person in all circumstances. but, I do aspire to be compassionate, life is hard enough and we need more compassion and I will add, more commitment, in our relationships. But the theme of this book is about those two ‘c’-words–compassion and commitment. And maybe a few others that didn’t make it.

Even setting aside the current political divide and racial issues (don’t get me started), just the general overview of life can’t help providing us with hurt and harm in the course of our days. We can think of hundreds of painful examples. But, that’s another topic altogether. Life is full of suffering at every level from a toothache, death of a beloved goldfish, fear (for example of various creatures, you know, spiders, snakes, bluebirds, or thoughts of losing someone we love, or other people-scary people, think Ted Bundy or Hannibal Lecter) and so on. . . . The extremes are the really scary ones like racism, or prejudice in other varieties, severe health issues, etc. And the bogey man of them all–death.

So compassion is the answer. ‘”All you need is compassion”, somehow doesn’t capture the imagination as Lennon and McCartney probably decided. Compassion means “Life not on my terms.” Sacrifice, patience, (Robert Louis Stevenson said, “Patience is the only true heroism.”), tolerance, commitment, compromise, sacrifice.

Marriage is a contract; love is not. when things are getting tough in any relationship, and maybe especially in marriage–certainly a long term commitment– it’s up to the one with the advantage to step up. Understanding is paramount, and taking a moment to consider what the other is maybe dealing with or any disadvantages they are carrying around in their life, requires compassion, even if it is a little risky. Or raw.

Whether we realize it or not, every choice we make in the course of our day involves some degree of risk, making a choice about which auto mechanic to trust, trying a new recipe–or more serious risks, allowing our child to walk to school alone, letting your child go out on a date (a biggy for those of us with daughters), or whether to disconnect life support for a loved one, flying cross country, or staying with an assaultive partner. (That last one is intended to cover stupid-compassion. Right?) You get it. Choices in all degrees include some risk. Stupid-compassion involves ignoring danger or loss because of fear. That’s a book, folks. But stupid compassion is, well, stupid.

Codependency is about fear or about stupid-compassion. Take your pick. Pure compassion is neither of these two positions. It is about a bond and a friendship. Respect for the other’s condition in this life. A commitment, for better or worse. And it is about love and compassion.

*Pema Chodron, fm Living Beautifully, Shambhala publications.

Mother, Night, and Water, Robert W. Chapman, available at Amazon.com/books

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LOVE IN THE TIME OF CORONA~part 2

Whenever Janis and I would talk about her childhood it almost, not always, but almost, turned to the abuse she received at the hands of her parents or others. This was either directly or indirectly (as in abuse, neglect and failure to protect), received from her mother. (Her father was alcoholic and mostly absent from the home – a form of neglect/abuse, a failure to protect). She blamed her mother for not protecting her. The sexual abuse was early, pervasive, and continued throughout most of her childhood years.

I spent over 30 years in social work, working with families and children at risk. Twenty of those 30+ years was with State of Maine Child Welfare, and Child Protective Services. In CPS, I conducted forensic interviews (many times working with law enforcement) all witnesses, including the child victims, the offenders, drafted legal affidavits, court orders, and legal summaries, prepared the legal case for court, and sat beside the Assistant Attorney Generals in the courtroom, for consult. Once a child was in custody I became, as agent for the State of Maine, legal guardian of any children on my caseload. Arranged all medical/psychological treatment plans and attended all meetings for each child at school or in therapy. I worked with foster parents in their home and monitored the care of the children. I also worked with the offenders in most cases as they went through treatment plans, and monitored, wrote legal documents, attended all court hearings for children in State custody working toward reunification, or termination of parental rights; and developed case plans and legal work for adoption.
I speak of this because I was married to Janis. I understood. I not only felt deep compassion for her plight as a child, I understood the dynamics of how this occurs, what treatment means for children of abusive experiences, and the depth of the harm done.
I write of Janis’s mother as she was represented to me by Janis and her siblings, and from my personal observation of her as a mother. I knew her, and by proxy, I knew her as Janis’s mother. It is strong language to put out there how Janis suffered from this abuse. But it needs to be told. And keep in mind that child abuse is often, not always, a learned behavior, and can be passed down through families. So…who’s to blame? (Part 3 looks at this issue). Understanding the adults that these children become, most often struggling with life in ways we, as fortunate adults from relatively caring, safe and loving childhoods, often take for granted. In some cases the damage may be so profound that the adult survivors end up in institutions, prisons – or dead. The abundant research is overwhelming and damning. Most survivors are heavy substance abusers, physically, or psychologically scarred. They may not appear so to us in everyday life, but they are here; suffering quietly, or not so quietly, but suffering.

I mention all the above before proceeding. Because, of all the abuse Janis went through, the single most damaging was the emotional trauma of abandonment – that is the loss of childhood. This theme became the baseline for all the other traumas, physical, psychological, and other emotional traumas that struck her down in those early developmental years. And I had the result of this woman’s childhood in my love, in my life I had this hurt child as an adult. I can speak to the consequences first-hand. And I will. So that her life will count for something. She wanted that more than anything, to be normal – her words, “I just want to be normal.”

She wanted to count for something, and she did. But the abusive early life, made it impossible for her to fully experience the positives in her adult life. She never gave up though. She kept trying (therapy, psychiatry-medications, acupuncture, biofeedback, diet/nutrition, exercise at the gym, yoga, and more). She wanted to be creative, and she dove into a creative period providing me with some beautiful artwork that hangs on our walls at home, as well as on the walls of her room in the compassionate memory care unit she resides in comfortably and safe today. She gave us three wonderful children (and three beautiful grandchildren); she is still to this day in care, giving to others; many of the staff that care for her now comment to me on her personality! This charming, charismatic girl can still shine through and bring a smile to the faces of the aides, nurses, housekeepers, and other staff. She gives kisses and chuckles and smiles, on her best days she even speaks a few words. She stunned the staff when she survived palliative care and death, to return to us last fall. She is giving of herself in many ways still. Her life is counting for something.

to be continued ~Part 3, Child Abuse: about who’s to blame?

The book, ENTANGLED, dementia, multi-diagnosis, love, and eternity is written and in pre-publish status.


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April 5, 2020 · 12:29 am

even now

even now 
when I think of her
I knew even then
I must endure

all the hurts she
had locked inside her
wounded heart
that could never be free

like injured birds
still try to fly
must we always take oath
to never slight words
that cry--
do not abandon me

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GRACE (c. 1925)

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Introduction

Act I: Daily Life

[edit]

The Stage Manager introduces the audience to the small town of Grover’s Corners, New Hampshire, its geography and main buildings and institutions, as well as the people living there, as morning breaks on May 7, 1901. Joe Crowell delivers the paper to Doc Gibbs, Howie Newsome delivers the milk, and the Webb and Gibbs households send their children (Emily and Wally Webb, George and Rebecca Gibbs) off to school on this beautifully simple morning.

So begins Our Town, by Thornton Wilder published in the early 1930’s.

Underneath a glowing full moon, Act I ends with George and Emily gazing out of their respective bedroom windows, enjoying the smell of heliotrope in the “wonderful (or terrible) moonlight,” with the self-discovery that they like each other, very much and the realization that they are both straining to grow up in their own way. Later as Emily and George are now teenagers; Emily reflects on life and her small town :

“Oh, earth, you’re too wonderful for anybody to realize you. Do any human beings ever realize life while they live it every, every minute?

CHRISTMAS 2004~ a year of magical thinking

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REDBIRD

Moving us through a mist

a foam

looking over at you

How did you do this

smile gentle beauty of youth

twice

sunny warmth a look

stay keep us here

keep us here 

now

awake

on a branch silence

red bird alone

watches from a distance

a safe distance

red against wet green 

a drizzle soft quiet

cool summer morning

blink

alone.   

                         rwc 2024
Face Book ~ Maine Novels by Robert Chapman

www.robertwchapman.com

robertchapmanblog.com

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Face Book ~ Maine Novels

 by Robert Chapman

www.robertwchapman.com

robertchapmanblog.com

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HOW TO FIX THIS MESS

Robert Frost said something like, all of life is a metaphor. Doesn’t help when trying to come up with a topic for this blog, too much to choose from. I’ve spent my entire adult life since leaving the military working with families and children. In retirement, I continue this work through my writings and books. I never planned to be a social worker. In fact, it was the last thing I expected to do.

If I were able to describe my surprise when I discovered, that was who and what I was, I’m not certain I could tell you. It might not be the thing that I do best, but I’ve come to the conclusion that it is the best thing I do. It turns out that I have spent a career watching out for children. Again – not the thing I did best, but I like to think that it has been, and is, the best way I could’ve spent my time. I’m a grandfather now and I can report to you that it is all it is cracked up to be. I am humbled, thrilled, and so proud that it is embarrassing, except it isn’t. Even writing this down I get butterflies thinking of them. Flip-side of this is that once you are a parent you are a parent for life. I worry about my grandchildren just a bit more than their parents do. My perspective has changed. I see every pothole in the road as a threat to each of them.

What would you think if I told you that most of the world’s problems can be solved? I’m going to launch this entry into my ideas about child abuse and the details may sometimes be, as the kids say- boring, but in this matter, the ends may justify the means.  I have come to recognize all children as bright, joyous creatures that should be cherished and respected for all that they are and for all that they will be encountering in life. We, as a species, through all cultures, have spent centuries ignoring or turning our heads when it came to the abuse of children. We know it, we think we see it, understand it, we pass laws and admonish, and sometimes even prosecute abusers in court. All to no avail. What many have not understood is that it is not just a matter of individual rights. Or parental rights. The truth is it has a crucial role in the diminishing of the social and economic advancement of our species. Someone said, “The measure of a species’ dignity is in how they treat their young.”

Do I have a simple answer? Of course not. But I’m convinced that I have an answer that addresses a fundamental truth of why the world is so violent. I’m not naive, and I know there are many wonderful and amazing things that life gives us. However, there is a puzzling force in life that leads to shocking and inexplicable violence, and mass shootings of people – of children! (What the hell is that about?)  I’m not going to recite all the violent episodes in life, but you get the picture. War is the most unbelievable, and for lack of a better word…stupid example. When a child is killed a manifestation of pure joy in the universe has been extinguished. And when a child is assaulted, even in minor ways, the assault has an impact on the child’s developing nervous system (see Behave, Robert M. Sapolsky Ph.D., Penguin, 2017).  

If asked what to do about it I get as overwhelmed as anyone else. But the clearest I can come to a response based on my own experience is three-fold: 1. Change the world one child at a time. 2. Be profoundly aware of the politics around child welfare issues and vote accordingly. Children are the priority. 3. Be kind to all kids regardless of your involvement. Children are shaped in big ways by even the smallest interaction we might have with them. You can never know the impact (even one interaction) your kindness may have on them. I have many examples of this, but I’ll mention one. I received a call while working at a summer camp as a social group worker, from a mother whose young son had spent a two-week session at camp. Later, at home, he was killed in an accident involving climbing a tree to get to his kite. The mother asked if I could reach a counselor that her son met at camp one summer. This counselor had left such a strong impression that her son always spoke of him. She wanted to reach him to be a pallbearer at her son’s funeral. As one of the administrators at the main office, I was able to track him down. The boy lived in Lewiston, Maine. I found the counselor, Don, living in California. I told Don about the mother’s request and how the two weeks he had spent at camp with her son in a cabin of rambunctious preteen boys, had influenced her son, and how Don had taught her son so much about being respectful and humane to others. And she was hoping he could be located and maybe participate in burying her boy as a pallbearer. Don was shocked! He and I spoke on the phone briefly. He told me he knew who the boy was but didn’t really recall any special attention other than one of ten rowdy boys he and another counselor had that summer for two weeks. There were four sessions, two weeks each – and a lot of kids. He dropped his life in CA for a trip back to Maine and carried the boy’s casket at the funeral. He left then to return to California. The mother called me later and thanked me for finding Don. Think of all the people that boy met in his life…Don had him for two weeks and made a lasting impression on not only that boy, but his mother and family.  And on me.

I have three adult children. I believe I am a good dad, not perfect, but good. I don’t expect parents to be perfect, I aspired to be a good parent in the hopes that life would find that good is good enough. But, as a grandparent(I have four) I confess that in my life-long experience with children, my own, and all the hundreds/thousands of kids I have come across, well I’m afraid good is not good enough. We must as concerned adults, find that fine line between good and perfect and aspire to the perfect, hoping to score at least a B+ in the process. Our kids will be okay if we can show the effort. They’ll be okay. We, not only as parents but as adults should be aware that kids are shaped by the respect we show them. Compassion and firmness when required. Role models for being, like Don, respectful and humane to others. 

“If we are to have real peace, we must begin with the children.” ~Gandhi
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the shortest summer, the longest winter


Note:
Folks who know us and see me often ask how Janis is doing. I don't have much to report because she is so advanced in this disease she is not presenting much to speak of. But since there are people outside of our immediate friends and family that don't hear personally from me, I'm offering this update of sorts.



The summer prior to Janis's placement, today seems as recent as only a few weeks ago. Its been years. It was a short and emotional summer. Our last summer together. The diagnosis was a 'rapidly progressing dementia'.
(So much for a rapidly progressing dementia).


I wrote about this in the book ENTANGLED. But rereading it today left me bereft. I'm sitting at the computer and devoid of words to describe that day. The day I let her go. I let her down. The fact that I was recovering from a stroke that past Memorial Day weekend now seems like a weak excuse for that decision.

I spent the afternoon with her yesterday. I gave her a facial massage with lotion, brushed her teeth, brushed her hair. I brought in some new earbuds and spent half an hour getting them set up. Gahh! I have little patience for anything in this digital world. But I persisted and we shared the earbuds. I had one and she wore the other. She only has partial hearing in her left ear. We spent the rest of the visit holding hands and listening to music. No discernable response. She looked at me occasionally, but didn't seem to recognize me. At one point as she dozed I let go her hand to do something and she reached out to grab my hand. I hug her and kiss her face and tell her I love her. No way to know if she hears or understands me. Hours go by. I watch her up face. I watch her sleep. Squeeze her hand and smile at her. When I leave I speak in her left ear (Not sure if she still hears or not she's lost all language and rarely makes even utterances.)

Lewy body dementia (lbd) is confusing to family members and friends. One reason is that a trademark of Lewy body is 'fluctuations' It means that things change often in the presentation of the disease day-to-day, hour-to-hour, for instance, they may bounce back somewhat and visit an earlier stage only to falter and continue in their decline. Where as, Alzheimers is generally a persistent descent. Some other symptoms of lbd, are Parkinson-like symptoms (shuffling walk, shaking,lack of facial expression), hallucinations, delusions, cognitive decline. Memory problems may start later. Over the past several months, and years, Janis has often appeared to rebound and visit to an earlier stage of the disease (fluctuations) only to quickly falter and continue in her decline. Not this time. The descent has been steady and observable. I'm still waiting to see her come back, but this has been a tenacious decline all this past winter. So we shall see.

It's storming today here on the coast of Maine. A light snow, and drizzle of rain at times. A raw, cold day.

That last summer together was brief. Janis and I are now in the longest winter of this disease.


People who care about me worry that I'm not moving on with my life. To that I say, "This is my life. I'm doing it right now."

I cannot really move on. There is this matter that I must attend to. We're not done yet.









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March 2, 2023 · 9:15 pm

PAINTED PONIES

William Carlos Williams has been a favorite of mine since high school. I confess I didn’t always appreciate his poetry, but it appealed to something in me. Later, as a young adult, I realized that much of his poetry had a flavor of Zen. That brought me back to rediscovering his writing and a fresh understanding of his use of words and metaphors.

A few days ago my oldest daughter contacted me (she just lives a mile away, but insists on texting. Another introvert, like her dad) and asked me if I had heard of Williams. Of course, I jumped right on it.

One of my favorites of his:

so much depends

upon

a red wheel

barrow

glazed with rain

water

beside the white

chickens

William Carlos Williams, “The Red Wheelbarrow” from The Collected Poems of William Carlos Williams, Volume I, 1909-1939, edited by Christopher MacGowan. Copyright 1938 by New Directions Publishing Corporation. Reprinted by permission of New Directions Publishing Corporation.

The truth? The older I get (now pretty damn old) the more respect I have for Williams’s amazing, almost haiku, way of capturing time, like a photograph. Words. Just words. Yet they are such a treasure when in the hands/mind of a great poet.

I’m writing this blog this morning to express my own need to capture time. As Janis waits for my next visit I am only able to reach my own heart and affection for her while sitting inside this blog.

Here’s another:

I have eaten

the plums

that were in

the icebox

and which

you were probably

saving

for breakfast

Forgive me

they were delicious

so sweet

and so cold

William Carlos Williams,”This Is Just to Say” from The Collected Poems: Volume I, 1909-1939, copyright ©1938 by New Directions Publishing Corp. Reprinted by permission of New Directions Publishing Corp.

See what I mean? He makes it clear that we must pay attention to every moment and gesture because the day may come when all we will have is words and no one to speak them to. Someone said, “Grief feels like fear, its love – with nowhere to go.” Don’t waste an opportunity to speak in the present the words that you will regret later if you do not speak them today.

Have a good New Year! 2023

Bob~

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THE SOUND OF LETTERS

The doors that look out in my backyard are what I believe they call French doors. Don’t know why. The point is they are full-size, double doors that are all glass. This morning it is a bright July day, the lawns are greenish but dry, and the trees are a deep, lush green. Summer in Maine. The sun warms the morning air, it will be another hot one, the slightest breeze barely makes it any cooler. Harpswell Bay is a brief walk from here down a sylvan road. There are some tangled woods, some birch, balsam, and other firs that cover my view. But this morning the gulls fly over and their calls make it clear that the Bay is nearby. My six-year-old granddaughter and her dog flash past my doors, so of course, I open the doors and greet them. I’m a sucker for a grandchild and her dog.

I confess here that I never got to 312.2 (Part Two), and in attempting to edit 312.2 (Part One) I accidentally deleted it. So…after an agonizing attempt to fix the problem I decided to just eliminate it and start with a blog draft that I had on hold. It’s more current. Now that you are completely confused I suggest you forget that whole confession. Not important. Not that any of this is important, but you know what I mean.

Brinley is my six-year-old granddaughter. She has privileged access to my apartment and I welcome her visits. One of the things she likes to do is read. She also likes to climb; do cartwheels; jump on my bed (I have to be alert to catch her now and then); dance; have pillow fights; do yoga, (cracks me up); tease for snacks, jump from the sofa to the chairs, and more recently play checkers, (she plays well, but squirms after a few minutes). She informed me that she wants to learn chess. I suggested we learn checkers first. She’s also impatient.

We have conversations. She likes to ask questions. Lately, she has shown an interest in the universe. Lots of questions about that! I suggest she play her piano, she asks about how high is the sky, I suggest she play her piano (her mom’s a pianist and teacher, and Brin is following in her mom’s footsteps) I cave in, and attempt to answer her questions. Next time she broaches the topic I’m going to teach her how to use Google. The problem is she isn’t ready to read at that level so I’m going to be reading it to her. Perhaps I’ll learn about the universe in the process. My point here is first, how much I love this child’s inquiring mind and also how she brightens my days.

Recently, during one of her reflective moments (moments: it doesn’t last longer than that), she was reflecting on her reading and asked me about a word. I don’t recall the word, but she was curious (oh yes, she’s curious) about how the letters make up a word. This was a topic as a writer, that I thought I could elaborate on and take the discussion as a lead-in to a talk about reading. She likes books and is eager to read. So…we, or I, started to sound out some words, she was genuinely engaged (this only encouraged me more on the topic). Somewhere around a discussion about the verb to be, (kidding) I looked over at her eyes (glassed over by now) and asked her if I was keeping her up. (Old grandpa is corny). She said, almost politely, “Nope. But I just wanted to know about the sounds that letters make.”

I love writing and I love reading. But It occurred to me that she knew exactly what she needed and it was a moment I will not forget. Speaking is about the sound that letters make. Reading is what letters sound like in our head. I need to keep that feeling I had at that moment. I’ve not been writing much lately.

Writing is the sound that letters make. A lesson. A simple truth from a six-year-old’s session with grandpa.

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